First soccer practice |
Our personal story of how Eosinophilic Esophagitis has affected our family and our fundraising efforts to race for a cure.
Thursday, March 24, 2011
Soccer
During the month of March, Jordan has experimented in playing soccer. Really, he just runs around on the field chasing after everyone else! It can be quite hilarious to watch. You can definitely tell which kids have played before. We are glad Jordan has gotten this experience and can't wait to see how he plays in the fall.
4th Birthday!
Jordan turned four years old on Monday, March 7th. We celebrated with our family at our house on Saturday, March 5th. Since Jordan is in love with dinosaurs, he had a dinosaur-themed party...complete with a triceratops cake. We are so fortunate to have such a loving and supportive family to celebrate this special day with us. We cannot believe Jordan is already 4 years old! It is amazing how fast he has grown and how much he has learned. Here are a few highlights from the party!
On Monday, March 7th, Jordan celebrated with his friends at Sandhills Children’s Center. Even though he didn’t eat the cupcake, he enjoyed licking the icing off!
On Monday, March 7th, Jordan celebrated with his friends at Sandhills Children’s Center. Even though he didn’t eat the cupcake, he enjoyed licking the icing off!
Happy 4th Birthday, Jordan!
Cortisol Level
Great news...Jordan’s cortisol level has doubled It was 4.8 several weeks ago. He had blood drawn again on Tuesday (March 8th). It was 10.9! Anything above 6 is normal. We took him off the Pulmicort completely Sunday, March 13th. Now, we will play the waiting game to see if any EoE symptoms start back. (throwing up, gagging, not sleeping...) We are really hoping this process will not be painful for Jordan.
Thursday, March 3, 2011
2010 Woodlake Triathlon
Last year, Walt competed in the Woodlake Traithlon in order to raise money for Samaritan's Purse. This year, he is competing to raise money for Apfed. Taken from the Apfed website,
If you wish to donate any amount of money to Apfed, you can click on the link on the right that says "donate here." The money goes directly to Apfed, but it is accounted for under "Team Wood." Thanks for your support in helping to raise awareness and research for this disease.
"The American Partnership for Eosinophilic Disorders is a non-profit advocacy organization for those living with eosinophilic esophagitis, eosinophilic gastroenteritis, eosinophilic colitis, hypereosinophilic syndrome, and other eosinophilic disorders. We are a resource for patients, their families, physicians and the medical community.
APFED provides accurate, up-to-date information on eosinophilic disorders and related problems. Our goals are to increase awareness, educate patients and physicians, increase funding for research and provide support for the eosinophilic community."
If you wish to donate any amount of money to Apfed, you can click on the link on the right that says "donate here." The money goes directly to Apfed, but it is accounted for under "Team Wood." Thanks for your support in helping to raise awareness and research for this disease.
2010 Woodlake Triathlon |
Jordan was proud of his Daddy! |
New article
I saw this posted on the Apfed facebook site. It is a really informative article on EoE.
Life without food
Life without food
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