Monday, March 5, 2012

Jordan's Current Diet

 One of the most frequently asked questions seems to be, "what can Jordan eat?" Here are some pictures of the foods Jordan can eat. We didn't take a picture of his rice milk or the coconut milk ice-cream he can eat...only the things he eats daily. Occasionally, he gets Dum-Dum suckers or Smarties candy. Amazingly, Jordan has adapted to his diet much easier than anyone could ever believe.
Enjoy Life cookies and candy bar

Jordan's main "food"...he needs 6 Splash daily

Most fruits, sweet potatoes, and cucumbers

Thursday, March 1, 2012

Rare Disease Day

 February 29th was recognized as Rare Disease Day 2012.
Eosinophilic Esophagitis is classified as rare due to the low prevalence, high level of complexity, and chronic debilitating nature of this disease. FOX Carolina based out of Greenville, SC made a video on a 6 year old boy named Giles Martin Schanen in honor of Rare Disease Day. Dr. Markowitz ( Jordan's pediatric GI doctor) is discussing EoE in the video link below.

FOX-Carolina EoE video