Nathan Miller Wood is born!

Being that he is now 5 months old, we thought it was only fitting to announce that Jordan now has a baby brother, Nathan! Nathan was born on April 22 at Moore Regional Hospital. He was 8 pounds, 15 ounces!! Unfortunately, Nathan was hospitalized in the NICU for 7 days due to Aspiration Pneumonia. He was such a trooper (and continues to be) during his stay! Jordan is such an awesome big brother! He loves Nathan, and Nathan loves Jordan just as much!!

   

  
      The million dollar question...will Nathan, or does Nathan, have EoE?? Our answer....we are praying not! Nathan did have lots of trouble the first few weeks of life as far as drinking was concerned. We switched from breastmilk and Enfamil to Good Start to Alimentum to Nutramigen to Elecare!! He also takes Prevacid 2 times a day and Reglan 4 times a day. Our current “thought” is that Nathan has a milk and soy protein allergy. Once we start introducing foods to Nathan, we will know more!
    God truly blessed our family in the fact that Randi was able to take a year off of work to stay home with Nathan and Jordan (half-day anyway). Our family of four is complete!

Rock the Cure

  The 1st annual Rock the Cure event was held on April 14, 2012 in Rockingham, NC. This event was created to help raise awareness and monetary support for Dravet Syndrome and Eosinophilic Esophagitis. Our family was honored that Jordan was chosen to be a part of this. In addition to everyone who helped and supported the event, we would like to give a huge thanks to Scotty Mabe, Glenwood United Methodist Church, fellowServant, Bob Nelson, Fortress, Freedom Praise, Ignite, 1st Assembly, The Christian Closet, L&M Bounce House rentals and JR Cottle from Andy's!! Without tons of community support, this event would not have been possible. Here are a few pictures from the event.

Jordan at the EoE table

Jack and Jordan

Dad and Jordan playing "Where I Belong" by Building 429

New EoE Article

This was a recent article from The Journal of Allergy and Clinical Immunology. In a brief overview, it compared the effectiveness of the elemental diet, 6-food elimination diet, and skin prick and atopy patch–directed elimination diet. Ninety-eight of 513 patients met the eligibility criteria.Of these 98 patients, 50% (n= 49), 27% (n= 26), and 23% (n= 23) received elemental, 6-food elimination, and directed diets, respectively. Remission occurred in 96%, 81%, and 65% of patients on elemental, 6-food elimination, and directed diets, respectively. The odds of post-diet remission versus non-remission were 5.6-fold higher (P= .05) on elemental versus 6-food elimination diets and 12.5-fold higher (P= .003) on elemental versus directed diets and were not significantly different.


Here is the link for the full text article:     EoE article

Jordan's Current Diet

 One of the most frequently asked questions seems to be, "what can Jordan eat?" Here are some pictures of the foods Jordan can eat. We didn't take a picture of his rice milk or the coconut milk ice-cream he can eat...only the things he eats daily. Occasionally, he gets Dum-Dum suckers or Smarties candy. Amazingly, Jordan has adapted to his diet much easier than anyone could ever believe.

Enjoy Life cookies and candy bar

Jordan's main "food"...he needs 6 Splash daily

Most fruits, sweet potatoes, and cucumbers

Rare Disease Day

 February 29th was recognized as Rare Disease Day 2012. http://www.rarediseaseday.org/
Eosinophilic Esophagitis is classified as rare due to the low prevalence, high level of complexity, and chronic debilitating nature of this disease. FOX Carolina based out of Greenville, SC made a video on a 6 year old boy named Giles Martin Schanen in honor of Rare Disease Day. Dr. Markowitz ( Jordan's pediatric GI doctor) is discussing EoE in the video link below.

FOX-Carolina EoE video